PATIENT ADVOCACY CONSULTING
Being diagnosed with a chronic illness cluster was simultaneously the most relieving and terrifying thing that has ever happened to me. Leaving that first appointment, diagnostic criteria in hand, I remember thinking, “well what now?! I have no idea where to start.”
In that moment, I needed someone who understood what it was like to live in a body with Hypermobile Ehler’s Danlos Syndrome (and company) and show me that there is a whole network of folks who can help. If I could have had a one-pager with recommendations for primary care, massage, acupuncture clinics that know what the heck connective tissue is, I would have saved so much time and emotional energy.
Good news for you - you found me. I’ve done the work already, and that one-pager exists - let’s get you connected.
But like, what is it?
Patient Advocacy Consulting is especially helpful for people who need guidance getting diagnosed with a primary or secondary condition and are navigating new health care territory. Finally getting answers about your complex health picture can help you move in the direction of receiving care that actually helps.
No more waiting 6-months for a specialist and then getting referred to another specialist. What do they specialize in anyway, referrals?! Yeah, we aren’t doing that.
You might not feel it now, but there are so many people that are knowledgable about Hypermobile Ehler’s Danlos Syndrome (hEDS), Postural Orthostatic Tachycardia Syndrome (POTS), and Mast Cell Activation Syndrome (MCAS) who want to help.
I’m one of those people! .
You’re not crazy, and we can figure out what is going on. Wherever you are on your journey, there is an opportunity to get you feeling better.
Patient Advocacy
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Patient Advocacy 〰️
Foundations Package
Feeling lost in the healthcare maze? Think you might have a connective tissue disorder or something complex? You’re not alone. Need help getting diagnosed? I’ve got you covered.
Foundations is designed to help you gain clarity, confidence, and direction as you begin navigating a new system with chronic conditions. Together, we’ll start with the basics: understanding your needs, mapping your symptoms, and clarifying priorities so you don’t feel like you’re starting from scratch every time you see a provider. Think of this as your grounding place — where overwhelm shifts into clarity and you begin to feel more in control of your care.
✨ A safe starting point for anyone new to patient advocacy support.
Empowerment Package
Need more time and tools to feel prepared? Me too. The truth is, navigating chronic illness in the healthcare system is a skill set — and you don’t have to figure it out alone.
In Empowerment, we build on the Foundations work with more space to practice, prepare, and problem-solve together. With extra support, I’ll help you develop skills like preparing for appointments, asking the right questions, organizing records, and advocating for your needs with confidence.
✨ Think of Empowerment as your bridge: where new skills become second nature and your voice starts to carry more weight in the room.
Resilience Package
Healthcare isn’t a one-time challenge — it’s ongoing. Resilience is about building systems and strategies that will keep supporting you in the long run, no matter what comes up.
Here, we’ll design personalized systems for communication with providers, symptom tracking, and decision-making that put you at the center of your care. We’ll even make a health-care binder that you can bring with you to your appointments so that intake conversation doesn’t take up so much of your time.
With ongoing text and email support between sessions, you’ll never have to navigate the confusing stuff alone.
✨ This is your all-access pass to patient advocacy support — sustainable, empowering, and always in your corner.