PATIENT EMPOWERMENT
You've got this.
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You've got this. 〰️
😰 Feeling lost after a chronic illness diagnosis? Need help getting a diagnosis? I can guide you through the confusing maze of hEDS, POTS, MCAS, and other complex conditions.
📝 Save time and energy — I’ve already compiled trusted recommendations for practioners who truly understand connective tissue disorders and lifestyle changes that actually help you feel better.
💡 Get actionable guidance — from navigating new diagnoses to connecting with the right care providers.
🚫 No more endless referrals — we cut through the wait times and confusion so you can get help that actually works.
🌟 You’re not alone — I understand your experience because I’ve been there myself, and together we can chart a path toward feeling better.
Being diagnosed with a chronic illness cluster was simultaneously the most relieving and terrifying thing that has ever happened to me. Leaving that first appointment, diagnostic criteria in hand, I remember thinking, “well what now?! I have no idea where to start.”
In that moment, I needed someone who understood what it was like to live in a body with Hypermobile Ehler’s Danlos Syndrome (and company) and show me that there is a whole network of folks who can help. If I could have had a one-pager with recommendations for primary care, massage, acupuncture clinics that know what the heck connective tissue is, I would have saved so much time and emotional energy.I needed to know how my body was different, and what to do about it.
Good news for you - you found me. I’ve done the work already, and that one-pager exists - let’s get you connected.
But like, what is it?
Patient Empowerment coaching is especially helpful for people who need guidance getting diagnosed with a primary or secondary condition and are navigating new health-care territory. Finally getting answers about your complex health picture can help you move in the direction of receiving care that actually helps. In general, my work centers around patient education and empowerment, as well as support through the diagnostic process of hEDS/POTS/MCAS.
No more waiting 6-months for a specialist and then getting referred to another specialist. What do they specialize in anyway, referrals?! Yeah, we aren’t doing that.
You might not feel it now, but there are so many people that are knowledgable about Hypermobile Ehler’s Danlos Syndrome (hEDS), Postural Orthostatic Tachycardia Syndrome (POTS), and Mast Cell Activation Syndrome (MCAS) who want to help.
I’m one of those people!
You’re not crazy, and we can figure out what is going on. Wherever you are on your journey, there is an opportunity to get you feeling better.
Patient Empowerment Packages
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Patient Empowerment Packages 〰️
🌼 Empowerment 🌼
$750
Getting diagnosed with hEDS, POTS, or MCAS can take years, and a lot of that time is spent bouncing between providers who haven't heard of these conditions. This package gives you a guide for that process: someone to help you make sense of what's happening, prepare for appointments, find providers who actually know these conditions, and feel better in the meantime.
I’ll help you develop skills like preparing for appointments, asking the right questions, organizing records, and advocating for your needs with confidence.
✨ For when you want ongoing support making decisions, preparing for appointments, and actually moving things forward.
Deep Dive Intake & Health Navigation Mapping (90 min)
4 Follow-Up Sessions (4 × 60 min)
hEDS/POTS/MCAS diagnostic process support
Guidance and referrals to vetted providers experienced with EDS, POTS, MCAS in your area
1-1 education about how these conditions work
Lifestyle change support to help you craft a routine that supports your everyday health before and after diagnosis
Access to discount codes and resource guide
Appointment prep & post-appointment action plan write-ups
🌳 Resilience 🌳
$1250
Healthcare isn’t a one-time challenge — it’s ongoing. Resilience is about building systems and strategies that will keep supporting you in the long run, no matter what comes up.
Here, we’ll design personalized systems for communication with providers, symptom tracking, and decision-making that put you at the center of your care. We’ll even make a health-care binder that you can bring with you to your appointments so that intake conversation doesn’t take up so much of your time.
With ongoing text and email support between sessions, you’ll never have to navigate the confusing stuff alone.
✨ For when you want high-touch, personalized, ongoing support.
Deep Dive Intake & Health Navigation Mapping (90 min)
6 Follow-Up Sessions (6 × 60 min)
hEDS/POTS/MCAS diagnostic process support
Guidance and referrals to vetted providers experienced with EDS, POTS, MCAS in your area
1-1 education about how these conditions work
Lifestyle change support to help you craft a routine that supports your everyday health before and after diagnosis
Access to discount codes and resource guide
Appointment prep & post-appointment action plan write-ups
Fully customized healthcare binder
Text/Email support in between sessions (responses within 24 hours on weekdays)
I believe in clear, upfront pricing so you always know what to expect. No hidden fees, no surprises—just straightforward information to help you make informed choices about your care and services.
Packages outside of your budget?
I totally understand that finances and illness can be complicated. Draft up a short proposal that includes what sort of specific support you’re looking for (diagnostic support, patient education, lifestyle support, how to screen for comorbidities, etc), how many sessions (and their length), and what price you think would be both fair and doable for you. I will review and get back to you!!
capitalism sucks. AND we have the chance to make a different choice! here is my attempt… 🌟
while i can only offer ✨ a few spots ✨ due to the nature of living in a disabled body and working within the limits of capitalism, i love to trade!
are you a content creator? a substack author? a canva extraordinaire? a jewelry maker? a entrepreneur yourself? i want to meet you. 😊
link to apply is below, and i’ll be sending out invitations to have a short connection call to check for fit and talk logistics soon!! 💛
YOU MUST APPLY VIA THE FORM TO BE CONSIDERED! leave a comment when you’ve submitted yours!! 💻
Hypermobility Huddle: A Zebra Support Space is a gentle, trauma-informed community gathering created for people living with hypermobility spectrum disorders, hypermobile Ehlers-Danlos Syndrome (hEDS), and related conditions like Postural Orthostatic Tachycardia Syndrome (POTS) and Mast Cell Activation Syndrome (MCAS) among others.
Held on the second Sunday of every month from 12-1:30PM (EST), this supportive group offers a space to slow down, be witnessed, and connect with others who truly get it.
Together we’ll blend:
Arriving mindfulness practice
Gentle, hypermobility-aware movement
Community connection and sharing
Practical resource exchange
A brief educational spotlight on a hypermobility-related topic
This is not a high-pressure or high-intensity space — you are always welcome to participate in the way your body allows on any given day.
The group is trauma-informed and accessibility-minded, facilitated by a National Board Certified Health & Wellness Coach (NBC-HWC) and experienced yoga and meditation teacher who lives in a hypermobile body herself.
Whether you’re newly diagnosed or have been navigating this for years, you are warmly welcome here. 🦓
If cost is a barrier, please reach out. I want this gathering to be as accessible for everyone as possible, and that includes making it affordable based on your situation.
Stability Club!
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Stability Club! 〰️
After your intake package, I’d love to have you as a member of our Stability Club!
Just want yoga and Hypermobility Huddle? Join our Community Membership.
There is something really beautiful in connecting with other folks who live with the same condition that we do on a regular basis. So come join a community that values moving our bodies with care, learning more about our conditions, making lifestyle progress, and finding other people who get it!
Contact Me
Curious about working together? I’d love it if you said hello.
